On NPR August 18, Robin Young interviewed John Zeisel and Sean Caulfield of ARTZ, Artists for Alzheimer's. You can hear the interview here.
In talking about their program which brings small groups of people with dementia to art museums, Zeisel said, "People become alive. People who see great art and are in front of great art and are focused and are engaged can’t also be agitated and anxious and aggressive and apathetic, the big 4 A’s of Alzheimer’s."
Zeisel analyzes an interaction between a woman with Alzheimer's and a docent, "The myth that people with Alzheimer’s have no memories is busted. The questions .... detoured that woman’s mind around whatever dysfunction there was there and got her access to those deep memories. She had, as a result of that story, a sense of who she was out of this mythological I have no memory, no self, no recognition of children, no expression. It’s all not true."
Sean Caulfield: "One reason we hear so much about people with Alzheimer’s losing their memory is because short term memory is the part of the memory that’s most affected. . .
Society doesn’t emphasize or place a lot of value on the fact that emotional memory, artistic memory, stays with people. We are seeing in our museum program people talking about the visit 2, 3, 4 days later, which goes against the general notion of people with Alzheimer’s remembering."
Zeisel responded to Robin about yet another interaction between Caulfield and a man with Alzheimer's, looking at old photographs together. "It was Shaun’s compassion, it was the way Shaun respected him and showed him the dignity of being a person who had a job and it was the visual picture that got the detour around the brain."
Caulfield responding to Zeisel: "I think it was what led up to that moment that enabled that moment to happen. We don’t test the brain. We don’t ask people 'Do you remember that painting?' ... it’s a very safe place ... he was completely open...."
I would add to Zeisel's and Caulfield's analysis of this second interaction that the moment was enabled because of the playful way that Caulfield interacted with the man. "I think I see you in the window. You're waving. Is that you?" The man and the rest of the group spontaneously burst out laughing. While that comment came after the man began identifying the photograph and memories, I believe that the interactional field between Caulfield and the people with dementia was already open.
IMy experience tells me that people with dementia also have a "social memory". If they have repeated experiences with the same person or group, they may not remember the names of the person or exactly what they did with them, but they do remember that this is a person they enjoyed being with.
If you are interested in people with dementia as a family member or caregiver, Zeisel's I'm Still Here is a wonderful and entirely readable book. I devoured it cover to cover at the recommendation of Dr. Cameron Camp, keynote speaker at a recent Massachusetts Alzheimer's Association conference, where I also had the opportunity to present.
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